Question 2

2.) What treatments for narcolepsy have you already tried? Do you use stimulants during the day? Do you take short planned naps? Or do you use an alternative treatment such as herbs or acupuncture? Once again, specificity is key. I want to know everything you have tried that has or has not worked. Also, if you see a sleep doctor, I'll need who he or she is by name and what sort of treatment plan was offered and whether or not that worked. If you can provide contact information for your sleep doctor, it will be extremely helpful. I need to know this in order to suggest it to other people who have been diagnosed with narcolepsy or who are wondering if they have narcolepsy.

I have already tried Paxil and Modafinil. I use a daily dose of 200 ml of Modafinil in the morning and 200 more at noon plus one daily dose of 20-30 ml of Paxil every morning. I have also tried Seretonin and GABA. Seretonin did not work for me. It left me tired and very foggy the next day. GABA works very well for me and helps me sleep at night and release the human growth hormone I am missing from my lack of deep REM sleep that I need but, I find the cost too prohibitive to continue on a daily or weekly basis.

Modafinil has worked by far the best for me. It helps keep me mentally awake and alert and it helps me to concentrate but I do find that it does not provide the refreshing feeling of a good nights sleep that I need to combat the physical tiredness and fatigue that I feel every day.

Paxil has also help me nearly eliminate the symptoms of Cataplexy.

I currently do not see a Sleep Disorders Specialist. I have been a patient of Dr. Jonathon Fleming's of the University of British Columbia, Canada and Stanford University California (USA) Sleep Disorders Clinic but he has not diagnosed me. I have threatened him with medical mal-practice suit and he has had me barred from anymore clinical treatment of my symptoms here in Vancouver British Columbia Canada. I do not have a family doctor but do see Dr. Murphy of the Granville Street Vancouver BC walk in clinic for my medical disorder and he is the doctor who prescribes Modafinil and Paxil for me on a monthly basis.

There addresses are as below:

* UBC Hospital
Rm. G-285 - 2211 Westbrook Mall
Vancouver, BC Canada
V6T 2B5
* Map

* Tel: 604.822.7606
* Fax: 604.822.9744

and

Granville Medical Clinic
Family Practice / Walk-In Clinic
2578 Granville Street
Vancouver, B.C.
V6H 3G8
604-733-4700

The story of Dr. Fleming and I is rather long but interesting and I can tell it to you if you want. I also have a signed copy of the letter he sent me barring me entrance from his medical clinic and all contact with his staff. As a result I have not been able to secure a reasonable diagnosis of my symptoms and go without.

The legal tort I have threatened him with is still in negotiation with my as of yet unnamed lawyer and the court until such time as I find a reasonable and favourable diagnosis of my symptoms to present as evidence of his mal-practice. To date I have still not been able to see any other Doctor of Medicine in regards to my sleep disorder.

There is only the one clinic in British Columbia, Canada and I have only medical insurance valid for this one Province.


Sincerely yours

Carloss